What Is Epidermolysis Bullosa (EB)?

Epidermolysis Bullosa, often called "the worst disease you've never heard of," is a rare connective tissue disorder that causes extremely fragile skin. Those born with EB are called "Butterfly Children" because their skin is said to be as fragile as a butterfly's wings.

The severity of EB can vary widely among patients: some have skin so sensitive that even the slightest rub or scratch can cause serious injury, while others may have blisters or sores, but are highly functional.

Since there is no cure yet for EB, treatment consists of pain management and daily wound care and protective bandaging to keep skin safe from more trauma. Many different products are used, depending on a patient's preferences, tolerance and skin sensitivity. So it is important to work with a provider that is familiar with EB and understands what dressings will work best for each individual patient.

CCS Medical has a long-standing history of treating EB and offers hundreds of products that are specific to the disease and will help with difficult-to-heal areas. Our team understands what EB patients and their families are facing and we prioritize the timely arrival of the exact supplies that are needed. Read more about Wound Care Supplies and view our Product Guide.

Updated references 06/28/19